Holly
08-23-2005, 04:58 PM
I really shouldnt call my mother...
Some back history..
My mom has Sarcidosis. It is an autoimune disease that make the body's immune system attack an organ and kill it like an invading cold germ. My mother struggled with this through out my childhood. I lived with the idea my mother could die any day now, b/c at that time sarcoids was a rare disease and there was no real treatments for it. For my mom her sarcoids attacked her lungs and musclar system. I speny my nights as a child hearing her racking cough all night and praying that she would live. Yeah i know.. i sound pathetic.
Now i have been diagnosed with PCOS. I cant do the regular method of relieve symtoms though birth control pills b/c i am intolerant to the synethic hormones. I take glucophage.. which is actually helping.
My grandmother had/has some form of gluten allergies, and a cousin on thr other side of the family has full blown cilliac(spellig?).
My mother has been harrassing me with phone calls about how all auto immune diseases are linked, and that my disease is really masquarding as Hashimoto's thyroid disease.
I have been trying to take it all with a shaker full of salt.
Today, She starts rattling off symtoms that she says i have that i didnt know/think i had. (HELLO when have i even been aenemic?)Now, i am freaking out about it on the inside, and trying not to get upset on the outside. I tell my mother, "what do you want me to do about this" and "should i call my Dr.?" and i get passive answers. When i stand up to her about the fact taht i dont have eyebrows that are falling out and brittle hair/ anemia she attacks me and gets all defensive about this.( Now some of these symtoms to mathc up with these other disease and this diagnosis makes sense.) She leaves me with the idea that maybe i have sarcoids and it is attacking my thyroid. (EEEEEEEEEEEEEEEEEEEEEKKKKKKKK!) and i prolly shouldnt call my dr b/c i might offend her... ( i dont see this dr until January). Now i have had my thyroid tested and it come out normal, however, with the thyroiditis you can only detect it when you are looking for the antigens and the .. something eles... basically another set of tests that i am pretty sure werent done on me.
http://www.ovarian-cysts-pcos.com/news14-pcos-thyroid.html#sec1
So here i sit with my head spinning about classes and now i get to add another trauma to my poor lil woe-begotten brain.
I am scared that i am getting the wrong treatment,
I am scared i have the wrong diagnosis
i am scared to talk to the dr about it now
i am scared that i might have my mother's disease
i am scared that i might TURN INTO MY MOTHER
do you ladies have any information on this connection?? or anthing else?
Some back history..
My mom has Sarcidosis. It is an autoimune disease that make the body's immune system attack an organ and kill it like an invading cold germ. My mother struggled with this through out my childhood. I lived with the idea my mother could die any day now, b/c at that time sarcoids was a rare disease and there was no real treatments for it. For my mom her sarcoids attacked her lungs and musclar system. I speny my nights as a child hearing her racking cough all night and praying that she would live. Yeah i know.. i sound pathetic.
Now i have been diagnosed with PCOS. I cant do the regular method of relieve symtoms though birth control pills b/c i am intolerant to the synethic hormones. I take glucophage.. which is actually helping.
My grandmother had/has some form of gluten allergies, and a cousin on thr other side of the family has full blown cilliac(spellig?).
My mother has been harrassing me with phone calls about how all auto immune diseases are linked, and that my disease is really masquarding as Hashimoto's thyroid disease.
I have been trying to take it all with a shaker full of salt.
Today, She starts rattling off symtoms that she says i have that i didnt know/think i had. (HELLO when have i even been aenemic?)Now, i am freaking out about it on the inside, and trying not to get upset on the outside. I tell my mother, "what do you want me to do about this" and "should i call my Dr.?" and i get passive answers. When i stand up to her about the fact taht i dont have eyebrows that are falling out and brittle hair/ anemia she attacks me and gets all defensive about this.( Now some of these symtoms to mathc up with these other disease and this diagnosis makes sense.) She leaves me with the idea that maybe i have sarcoids and it is attacking my thyroid. (EEEEEEEEEEEEEEEEEEEEEKKKKKKKK!) and i prolly shouldnt call my dr b/c i might offend her... ( i dont see this dr until January). Now i have had my thyroid tested and it come out normal, however, with the thyroiditis you can only detect it when you are looking for the antigens and the .. something eles... basically another set of tests that i am pretty sure werent done on me.
http://www.ovarian-cysts-pcos.com/news14-pcos-thyroid.html#sec1
So here i sit with my head spinning about classes and now i get to add another trauma to my poor lil woe-begotten brain.
I am scared that i am getting the wrong treatment,
I am scared i have the wrong diagnosis
i am scared to talk to the dr about it now
i am scared that i might have my mother's disease
i am scared that i might TURN INTO MY MOTHER
do you ladies have any information on this connection?? or anthing else?