Mairi the Herbwench
03-25-2004, 02:15 PM
OK - anyone heard of this? I've been out for the last 5 weeks with this - 1 week in the hospital, and we're still trying to get my blood thinned to the right level. Working in a hospital, I've been able to use the library here, and pick the brain of a lot of the doctors, but the problem is that this is such a rare condition that there's little written.
So - anyone else have/heard of this? We've contacted the Genetic and Rare Disease part of the NIH, and they had some resources but I still want to talk with another perso who's been thru this...
So - anyone else have/heard of this? We've contacted the Genetic and Rare Disease part of the NIH, and they had some resources but I still want to talk with another perso who's been thru this...